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Time to Listen to SCD
Advisory Committee

Time to Listen to EDS
Advisory Committee

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Donna Sullivan

Patient Advocate; Rare Disease Documentary Producer

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Sue Pinkham

President, The Coalition Against Pediatric Pain

Dr. Judy Washington

Assoc Chief Medical Officer
Atlantic Health

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Brenda Merriweather

Research Nurse Specialist, Sickle Cell Branch at The National Heart, Lung and Blood Institute

Dr. Karen Macey-Stewart

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Jonathan Rodis

Rare Disease Patient Advocate

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Julie Goertz

Rare New England

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Mariah Scott

Epidemiologist and Yale University post-graduate SCD researcher

Mandy David

CEO and Principal Consultant

Sickle Smart Consulting

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John Fermin

Founder, Chronic Pain Partners

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Teonna Woolford

CEO  Sickle Cell
Reproductive Health Education Directive

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Lametra Scott

Andre Marcel Harris

CEO Breaking The Sickle Cell Cycle

Foundation, TDOC Director of Pharmacy

Have Questions?

​Rare Life Solutions, Community Manger

Special Consultant

Dr. Wanda Witten-Shurney

CEO/Medical Director Sickle Cell Disease Association of America, Michigan Chapter

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