Time to Listen™ to SCD
Advisory Committee
Time to Listen™ to EDS
Advisory Committee

Donna Sullivan
Patient Advocate; Rare Disease Documentary Producer

Sue Pinkham
President, The Coalition Against Pediatric Pain

Dr. Judy Washington
Assoc Chief Medical Officer
Atlantic Health

Brenda Merriweather
Research Nurse Specialist, Sickle Cell Branch at The National Heart, Lung and Blood Institute

Dr. Karen Macey-Stewart

Jonathan Rodis
Rare Disease Patient Advocate

Julie Goertz
Founder/President
Rare New England


Mariah Scott
Epidemiologist and Yale University post-graduate SCD researcher
Mandy David
CEO and Principal Consultant
Sickle Smart Consulting

John Fermin
Founder, Chronic Pain Partners

Teonna Woolford
CEO Sickle Cell
Reproductive Health Education Directive


Lametra Scott
Andre Marcel Harris
CEO Breaking The Sickle Cell Cycle
Foundation, TDOC Director of Pharmacy
Rare Life Solutions, Community Manger
Special Consultant

Dr. Wanda Witten-Shurney
CEO/Medical Director Sickle Cell Disease Association of America, Michigan Chapter