Time to Listen™ to SCD
Advisory Committee
Time to Listen™ to EDS
Advisory Committee
Donna Sullivan
Patient Advocate; Rare Disease Documentary Producer
Sue Pinkham
President, The Coalition Against Pediatric Pain
Dr. Judy Washington
Assoc Chief Medical Officer
Atlantic Health
Brenda Merriweather
Research Nurse Specialist, Sickle Cell Branch at The National Heart, Lung and Blood Institute
Dr. Karen Macey-Stewart
Jonathan Rodis
Rare Disease Patient Advocate
Julie Goertz
Founder/President
Rare New England
Mariah Scott
Epidemiologist and Yale University post-graduate SCD researcher
Mandy David
CEO and Principal Consultant
Sickle Smart Consulting
John Fermin
Founder, Chronic Pain Partners
Teonna Woolford
CEO Sickle Cell
Reproductive Health Education Directive
Lametra Scott
Andre Marcel Harris
CEO Breaking The Sickle Cell Cycle
Foundation, TDOC Director of Pharmacy
Rare Life Solutions, Community Manger
Special Consultant
Dr. Wanda Witten-Shurney
CEO/Medical Director Sickle Cell Disease Association of America, Michigan Chapter