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Recent Programs

Time to Listen to Sickle Cell Disease for Medical Students

    Dynamic workshop introducing medical students to the clinical aspects of SCD and providing them with a humanistic perspective of its emotional, psychological, professional, financial and social/behavioral impact.
Workshop for Medical Students    January 2024

Human Resources: Patients as Sources of Disease Information

    Interactive educational activity teaching observational strategies and gentle interaction techniques to help them use these defense mechanisms as the key to successful relationship building, leading to improved health outcomes.

Workshop for Medical Students    February 2024

Pilot Program: Time to Listen to Sickle Cell Disease for School Nurses

A case study-based course presented to the Maplewood-South Orange NJ school district nurses about how to manage SCD medical and social challenges in the school setting.

Workshop for Medical Students    March 2023

Orientation for  RARE Compassion  Program

Workshop for Medical Students    March 2023

Workshop for Rare Disease Patients and Families

Time to Listen: Health Equity for All

Overlook Medical Center      Summit, NJ

Time to Listen to Sickle Cell Disease

Compassionate Care in the Acute Setting

Overlook Medical Center      Summit, NJ

                                      

Patient Empowerment Webinar Series

Effectively Communicating with Health Care Providers
Ehlers-Danlos Support Group       Atlanta, GA

Time to Listen to Rare Disease

Pediatric Pain Through the Lens of Ehlers-Danlos

Overlook Medical Center      Summit, NJ

Time to Listen to SCD

Listening with the Heart, Virtually

Overlook Medical Center     Summit, NJ


 

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