Recent Events

Time to Listen to Sickle Cell Disease

Compassionate Care in the Acute Setting

Overlook Medical Center      Summit, NJ

Orientation for  RARE Compassion  Program

Workshop for Medical Students    March 2022

Workshop for Rare Disease Patients and Families                                      

Patient Empowerment Webinar Series

Effectively Communicating with Health Care Providers
Ehlers-Danlos Support Group       Atlanta, GA

Time to Listen to Rare Disease

Pediatric Pain Through the Lens of Ehlers-Danlos

Overlook Medical Center      Summit, NJ

Time to Listen to SCD

Listening with the Heart, Virtually

Overlook Medical Center     Summit, NJ