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Recent Programs

Pilot Program: Time to Listen to Sickle Cell Disease for School Nurses

A case study-based course presented to the Maplewood-South Orange NJ school district nurses about how to manage SCD medical and social challenges in the school setting

Orientation for  RARE Compassion  Program

Workshop for Medical Students    March 2023

Workshop for Rare Disease Patients and Families

Time to Listen: Health Equity for All

Overlook Medical Center      Summit, NJ

Time to Listen to Sickle Cell Disease

Compassionate Care in the Acute Setting

Overlook Medical Center      Summit, NJ

                                      

Patient Empowerment Webinar Series

Effectively Communicating with Health Care Providers
Ehlers-Danlos Support Group       Atlanta, GA

Time to Listen to Rare Disease

Pediatric Pain Through the Lens of Ehlers-Danlos

Overlook Medical Center      Summit, NJ

Time to Listen to SCD

Listening with the Heart, Virtually

Overlook Medical Center     Summit, NJ


 

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