Upcoming Events
Come visit us at the World Orphan Drug Conference-US
Stop by our table at the conference in Boston to play Getting Ducks in a Row for Rare Disease Patients for a chance to win exciting prizes and learn more about Pathways To Trust!
Time to Listen to Sickle Cell Disease for Medical and Nursing Students
Dynamic workshop introducing medical students to the clinical aspects of SCD and providing them with a humanistic perspective of its emotional, psychological, professional, financial and social/behavioral impact.
Ongoing sessions Spring Semester 2024
Programs in Development
Time to Listen to Sickle Cell Disease in the Emergency Department
Interactive workshop to help Emergency Department healthcare providers
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Identify the impact of racial bias in SCD treatment
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Correct;y diagnose and appropriately treat complications
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Recognize the emotional, financial, professional and social/behavioral impact of SCD
Walk In My SHOES: Sickle cell Health Outcomes Education Skits
University of Illinois at Chicago
Sickle Cell Disease Consortium Mental Health and Wellness Initiative
Workshop: Breathing to Better Manage a Crisis
Workshop: Rewriting the Narrative
Workshop: Movement to Better Manage a Crisis
Time to Listen to Rare Disease: Patient Empowerment Webinar Series
Effectively Communicating with Health Care Providers
Providence, RI Boston, MA