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Current programs

Upcoming Events

Transition and Shared Decision Making 

for Patients with Sickle Cell Disease

Program to help patients become full partners in their treatment as they transition from pediatric to adult care

September 16, 2025

7:00 pm

Virtual Program

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Re-Imagining Pain Through Art

and Symphony of Voices

Art Exhibit and Poetry Performance Raising Awareness of the Challenges faced by rare disease patients and celebrating their strength. Featuring works created by patients who use art to help manage chronic pain.

Date TBD

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Programs in Development

Time to Listen to Sickle Cell and Connective Tissue Disease 

Six interactive workshops for medical students, nursing students, residents, nurses and clinicians that reveal the 360-degree experience of patients with SCD or Connective Tissue Disorders. Participants will be able to develop effective and respectful strategies for treating and interacting with these patients through recognizing the medical, emotional/psychological, social/behavioral, and financial/professional aspects of living with these diseases. ​

Fall 2025 - Spring 2026

Online

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