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Current programs

Upcoming Events

Come visit us at the World Orphan Drug Conference-US

    Stop by our table at the conference in Boston to play Getting Ducks in a Row for Rare Disease Patients for a chance to win exciting prizes and learn more about Pathways To Trust!

Time to Listen to Sickle Cell Disease for Medical and Nursing Students

    Dynamic workshop introducing medical students to the clinical aspects of SCD and providing them with a humanistic perspective of its emotional, psychological, professional, financial and social/behavioral impact.
Ongoing sessions
Spring Semester 2024




Programs in Development

Time to Listen to Sickle Cell Disease in the Emergency Department     

Interactive workshop to help Emergency Department healthcare providers

  • Identify the impact of racial bias in SCD treatment

  • Correct;y diagnose and appropriately treat complications

  • Recognize the emotional, financial, professional and social/behavioral impact of SCD

Walk In My SHOES: Sickle cell Health Outcomes Education Skits

      University of Illinois at Chicago

Sickle Cell Disease Consortium Mental Health and Wellness Initiative

     Workshop: Breathing to Better Manage a Crisis

      Workshop: Rewriting the Narrative

      Workshop: Movement to Better Manage a Crisis


​​Time to Listen to Rare Disease: Patient Empowerment Webinar Series
Effectively Communicating with Health Care Providers

Providence, RI              Boston, MA                                     


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