Upcoming Events
Blood Drive to Support Sickle Cell Community
Friday, March 21 11:00 am -5:00 pm
Essex County Hall of Records Parking Garage
84 W Market Street, Newark NJ
Sponsored by Pfizer Rare Disease
www.sicklecellspeaks.com
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Opening Reception for Re-Imagining Pain Through Art: Art Created by Rare Disease Patients
​Kick Off of Garden State Arts Weekend
Thursday, April 24 6:00 pm - 8:30 pm
Featuring a presentation about the healing properties of art for patients with chronic disease
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Sponsored by Pfizer Rare Disease
www.sicklecellspeaks.com
Gym, other sponsors
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Panel Discussion to Support Sickle Cell Community - Financial Strategies Part II -- Your Career and Sickle Cell
Wednesday, April 30, 2025
5:00 pm to 7:30 pm
South Jersey (Location TBD)
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Programs in Development
Navigating Romantic Relationships with Sickle Cell Disease
Panel discussion featuring SCD and Relationship Experts discussing the challenges of dating and forming successful relationships while managing SCD
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Recent Events
Dollars and $ense: Financial Strategies for the Sickle Cell Community
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Panel discussion of SCD and disability rights experts about making career decisions, rights in the workplace, and alternate forms of employment for patients with volatile health conditions.
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Meet the Author at Re-Imagining Pain Through Art: Art Created by Rare Disease Patients
Sunday, October 5 2:00 pm -4:00 pm
Featuring:
Sybil Archibald
The Inner Life of the Artist, 900 Monotypes in 900 Days
Mauvareen Beverley, M.D
9 Simple Solutions to Achieve Health Equity
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Closing Reception for Re-Imagining Pain Through Art: Art Created by Rare Disease Patients
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A Symphony of Voices: Poetry by Patients with Rare Diseases
Sunday, October 13 2:00 pm - 4:00 pm
Actors and Artists reciting poetry of Rare Disease Patients
Jazz brunch featuring Greg Burress Production
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