Upcoming Events
Come visit us at the World Orphan Drug Conference-US
Stop by our table at the conference in Boston to play Getting Ducks in a Row for Rare Disease Patients for a chance to win exciting prizes and learn more about Pathways To Trust!
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Time to Listen to Sickle Cell Disease for Medical and Nursing Students
Dynamic workshop introducing medical students to the clinical aspects of SCD and providing them with a humanistic perspective of its emotional, psychological, professional, financial and social/behavioral impact.
Ongoing sessions Spring Semester 2024
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Programs in Development
Time to Listen to Sickle Cell Disease in the Emergency Department
Interactive workshop to help Emergency Department healthcare providers
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Identify the impact of racial bias in SCD treatment
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Correct;y diagnose and appropriately treat complications
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Recognize the emotional, financial, professional and social/behavioral impact of SCD
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Walk In My SHOES: Sickle cell Health Outcomes Education Skits
University of Illinois at Chicago
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Sickle Cell Disease Consortium Mental Health and Wellness Initiative
Workshop: Breathing to Better Manage a Crisis
Workshop: Rewriting the Narrative
Workshop: Movement to Better Manage a Crisis
​​Time to Listen to Rare Disease: Patient Empowerment Webinar Series
Effectively Communicating with Health Care Providers
Providence, RI Boston, MA
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