What is Pathways To Trust About?
At Pathways To Trust, our mission is to elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together.
In healthcare, the patient's needs and goals can get lost. They are not a focus in medical schools, in continuing medical education and often, not even in their own medical care. No group understands this more than the rare disease population.
Rare disease patients also face the high hurdles of implicit bias in healthcare settings. Sometimes they face racial bias, sometimes gender bias. And because their symptoms and conditions are so complex and difficult to diagnose, there is often a bias that paints rare disease patients as attention-seekers, drug-seekers, or emotionally unstable in general.
We founded Pathways To Trust in 2020 to address this challenge by creating disease-specific educational programs that draw on the expertise of patients, patient advocates, rare disease thought leaders, healthcare providers, health systems, pharma/biotech industries and payors. By bringing together all these perspectives with the patient's voice at the center, we foster trust among all stakeholders to build a better healthcare system that is responsive, empathetic, and focused on patient-identified outcomes.