Rare Disease Education Programs
An important part of the mission of Pathways To Trust is educating healthcare professionals and students of these professions in the 360-degree experience of being a rare disease patient.
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Clinical aspects including pathophysiology, symptoms, and disease progression
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Current treatment guidelines
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Patient experience when attempting to access care
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Emotional, financial, and social/behavioral impacts on the daily lives of patients
Below please find links to our programs on specific rare diseases. We invite you to watch these compelling videos to learn more about how you can better serve patients with these conditions and by extension, any rare disease patient. These programs include clinical information presented by healthcare providers who are thought leaders in these areas, and the personal experience of real patient advocates who have dealt with the conditions for years. We know you will find the 90-minute courses valuable and fascinating.
Pathways To Trust is pleased to offer those who have completed our courses a certificate, suitable to be displayed, that attests to their education in this topic. To obtain your certificate, please return to this page after completing the course and take the online survey. We will email you your certificate.
Thank you for your interest in rare diseases and for furthering your knowledge through these programs!