It’s Time to Listen to the Rare Disease Community.

​

Pathways To Trust focuses on the needs of rare disease patients facing high hurdles to care. We know these biases can be eliminated once these patients’ voices are part of the conversation. To make this happen, we provide disease-specific educational programs for medical students, healthcare providers and patients. Our content is developed by patients and patient advocates themselves, and incorporates the perspectives and contributions of multiple stakeholders so all members of the rare disease community can work together to deliver truly patient-centered care.