Visit us at the World Orphan Drug Congress-US in Boston, MA
April 23 - April 25!
CARING FOR THOSE WHO HAVE BEEN LEFT BEHIND
It's Time To Listen to Patients Who Are Not Heard
There are more than 10,000 rare diseases
but less than 10% have an FDA approved treatment
There are 30 million rare disease patients in the US
but 95% of physicians feel unprepared to treat them
There are 6,093 US hospitals,
but rare disease patients travel an average of 563 miles just to get a diagnosis
It’s Time to Listen to the Rare Disease Community.
Pathways To Trust focuses on the needs of rare disease patients facing high hurdles to care. We know these biases can be eliminated once these patients’ voices are part of the conversation. To make this happen, we provide disease-specific educational programs for medical students, healthcare providers and patients. Our content is developed by patients and patient advocates themselves, and incorporates the perspectives and contributions of multiple stakeholders so all members of the rare disease community can work together to deliver truly patient-centered care.
Click below to view of 2023 Impact Report!
