The Rare Life, Part II

What Stands in the Way of Access to Healthcare for Every Patient?

The Rare Life, Part I

Why Does My Doctor Have That Look on Her Face?

See Me, Not Just My Diagnosis

First Do No Harm: An Open Letter to Administrators Crafting Policies for Ventilator Allocation

Online Survey Debuts to Discover Effect of COVID-19 on Rare Disease Patients

It’s a Tough Time…but It’s Even Tougher for Rare Disease Patients