top of page
Home
Our Team
Board of Directors
Advisory Committee
Events
Current Programs
Re-Imagining Pain Through Art
Recent Programs
Initiatives
Time to Listen to Sickle Cell Disease
Time to Listen to Ehlers-Danlos
Healthcare Equity for All
Partners
Media Kit
Contact
Testimonial
More
Use tab to navigate through the menu items.
All Posts
Search
mlincoln214
Apr 7, 2022
3 min read
FULL CIRCLE
mlincoln214
Mar 7, 2022
1 min read
Coming Soon: Guest Blogs
mlincoln214
Feb 22, 2022
1 min read
Selfcare is Healthcare, Part II: Sleep
mlincoln214
Feb 16, 2022
2 min read
Self-Care is Healthcare, Part 1
mlincoln214
Jan 31, 2022
1 min read
Share Your Colors on Rare Disease Day 2022
mlincoln214
Jan 24, 2022
1 min read
Designing Rare Disease Patient-Friendly Clinical Trials
mlincoln214
Jan 18, 2022
2 min read
The Challenges of Rare Clinical Trials
mlincoln214
Jan 10, 2022
2 min read
The Other Bias in Healthcare
mlincoln214
Jan 3, 2022
1 min read
Yet One More Thing to Deal With
mlincoln214
Dec 7, 2021
1 min read
Smartphone Caregiver Mental Health Intervention
mlincoln214
Nov 30, 2021
2 min read
Parenting a Child with a Rare Disease: Isolation
mlincoln214
Nov 15, 2021
2 min read
Parenting a Child With a Rare Disease: Fighting for Quality Medical Care
mlincoln214
Nov 1, 2021
2 min read
The Trouble With Transportation
mlincoln214
Oct 25, 2021
2 min read
The Science of Pharmacogenetics
mlincoln214
Oct 19, 2021
1 min read
Attention Must Be Paid
mlincoln214
Oct 13, 2021
1 min read
Limits of the Pain Scale
mlincoln214
Oct 4, 2021
1 min read
The Freak in the Room
mlincoln214
Sep 27, 2021
1 min read
The SCD Community: We Are the World
mlincoln214
Sep 20, 2021
2 min read
Introducing...Ehlers-Danlos Syndrome
mlincoln214
Sep 13, 2021
2 min read
Kids' Lit: A teaching Tool About Sickle Cell?
1
2
Blogs
bottom of page